Aug 19, 2014 4:30 PM by Sara Donchey
CORPUS CHRISTI - Kelly Rhodes knew something was wrong when she had 42 serious falls in a year and a half.
So in 2011, she went in to the doctor for a battery of tests. She was prodded and poked like a pincushion.
"I'm not getting a tattoo," Rhodes joked. "If i do, it'll say, 'Poke here.'"
Doctors initially diagnosed Rhodes with Stiff Person Syndrome, a rare neurologic disorder that makes the body feel rigid and stiff.
But after two years of treatment, Rhodes wasn't getting better.
That's when she traveled to the Baylor College of Medicine in Houston to get another opinion.
"The doctor had already gotten the results and he said, 'Well...it's ALS.'"
Rhodes was shocked.
ALS, often referred to as Lou Gehrig's Disease, is a disease that affects the nerves and brain and often leaves people unable to move or talk.
"I have arthritis and atrophy in my hands, and they're pretty shaky right now," Rhodes looked down to her hands as they trembled in her lap. "There are things you have to re-train yourself how to do. It's a big deal to go and tie a bow in a dress."
She can't drive, or work as a pre-school assistant teacher anymore. But Rhodes' struggles haven't gotten her down.
"There's hope. There is hope. We all have our good days and our yuck days..all of us do! And I'm no exception."
The recent explosion in popularity of the online "Ice Bucket Challenge" has been delightful for Rhodes.
As of Tuesday, it had already raised $22.9 million dollars for the ALS Association.
Rhodes calls fad "crazy awesome." In fact, she says she's up for the challenge herself.
2 hours ago
Do you have a tip, information about a breaking news story, or a story idea for 6 Investigates? Contact the KRIS 6 News Desk at 361-884-6666 or send us an email.
Send us your feedback. We want to hear from you!
Look at photos and videos and share them!
|KRISTV.COM Mobile Website
Get KRISTV.com on your mobile or PDA!
|KRISTV.COM Mobile Apps
Get our mobile apps on your mobile or PDA!
See the latest winning numbers!
|6 News Team
Read about your favorite KRIS-TV personalities!
|FCC Online Public File
FCC Public File of Records, Reports, and more